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Professionalization and restructuring of PARENT PROJECT

Department 58 – International Relations
Department 58 – International Relations

Published

Project
Region National coverage
Title of the ProgrammeHealth
Title of the ProjectProfessionalization and restructuring of PARENT PROJECT
Number of the ProjectZD-MGS3-034
Project Promoter

PARENT PROJECT

Project Partner from Donor State

Frambu Foundation (Norway)

Czech Partner

N/A

Status

Estimated project duration: 1/2022 – 12/2023

More Information

Target group:    

General public
People with disabilities

Web pages:

https://www.parentproject.cz/
https://www.facebook.com/parentproject.cz

 

Total Eligible Costs

157 684 EUR

Grant

157 684 EUR (100 %)

Summary:

PARENT PROJECT is a Czech patient organization founded in 2001 by parents of children with Duchenne or Becker muscular dystrophy. The organization focuses on advocacy, individualized care, education, raising awareness, international cooperation, cooperation with doctors and neuromuscular centers in the Czech Republic, and also organizing social gatherings for its members.

At the moment, the team consists of active parents of children with neuromuscular disease and of several experts (doctor, psychologist, physiotherapist, occupational therapist, social worker), everyone on the team is irreplaceable and due to the limited personal capacity, the organization can't reach the maximum potential.

The goal of this project is to professionalize the organization and to secure long-term financial sustainability.

The key activities are:

  1. strengthening staff capacity,
  2. development of provided services,
  3. patient advocacy and networking and
  4. publicity of the project.